I AM A SPOILT PATIENT!!!
I had the most pleasant BMA (bone marrow aspirate) today. :)
I really have to take my hats off my doc. She really have the right technique to keep the crybaby in me in check. I registered for my BMA and was told to come back 45 min later as the MO is not here yet. So I came bk after 45 min and was told that Yvonne was looking for me.... I had like the nurses, the tech staff, even the cleaner telling me that my doc was looking for me to do my BMA. Most probably she was too fed up with my constant whining of my last
traumatic BMA, she decides to get her hands dirty with my blood *cough cough* er hem. But she really do not have to do that. She was running late for her meeting and yet she did the BMA for me. A consultant.... doing BMA for patients... which was supposed to be a medical officer job. It's amazing. I love my doctor :)
Anyway, it was a fun experience. I requested for a female nurse this time, who was one of my fav nurse, Li Sack to help me. She was really funny and helpful. And the tech staff (who had a really unique name Blanche) who was there to check the BMA equipment was really friendly too. First time I met her and already she was chatting with me like I was an old patient of hers. Anyway, 3 women in a room = noisy market. They were chatting with each other like they were talking over lunch. And me is their "lunch". Yvonne was like poking my bone and chatting with the other 2 ladies talking about really funny stuff. Was trying very hard not to laugh. It wont be funny if the needle poke through more than it should while I laughed.
Anyway, it was a pleasant experience. I was laughing before, during and after the BMA, I think it really relaxed the auntie outside waiting for her turn for her BMA. Well, sad to say, I was Yvonne's last patient. Then the MO took over. Hope the auntie was fine. *sweats*
Joanne: Can you leave a comment on ur email and I will get back to you. Promise won't expose ur email. ^^
Uninsurable
My insurance was throw out because I had the lump before I got my insurance, though my nodes were swollen for really quite some time. ANd seriously, who would have declare a swollen node when you have been reading on papers about fever causing nodes to swell?
So anyway, insurance throw out, I am uninsurable. I can't get a single cent.
Friday I have another bone marrow biopsy.
I don't want to cry again for myself but sometimes it is really so hard not to.
Help needed
Someone's bro, only 17 this year, needed platelet donation badly.
Not a joke OBVIOUSLY
His blood type is A+.
Please help. Go to SGH block 7 level 2 (Haemotology centre, which is like my 3rd home already) and request for a screening. Please also request that you are donating to FUK KAR WAI.
Help please! And please spread the word
Thanks
Sad news
A room mate of mine, one of the patients that shared the room with me when I first got admitted into hospital passed away. Only knew it last week from another room mate of ours. This lady is at most 30+, and had ALL (acute leukemia). Did a stem cell transplant, but platelets keep dropping. The medicine didnt work on her and she can only rely on a drug that is still on clinical trial in the States. Heard that she has lung failure and passed away...
Quite a shocking news... Now I know what Lishan mean when she says that her circle of combats in cancer fighting become smaller and smaller as the days went by.
I am now pretty worried about Sarah, the other room mate of mine. Sms'ed her last week and till now, no reply.
I wish she is just too happy and well or maybe enjoying herself travelling to reply me.
The End
40 Packets of chemo drugs, countless times of setting plug, 6 months of therapy, 7 times of puking (approximately), 3 times of constipation (approximately), 1 back ache so bad I cannot bend down, 60 days of MC later, I had finally finished my chemo!!!
Originally I am supposed to have 42 packets of chemo drugs. But I was having running nose on my last day so my doc decides to end my misery earlier by omitting the last dose of fludarabine and cyclophosmide.
Happiness!
:D
Toxin
Today I ask the nurse why do they have to wear protective gear (robe, gloves, mask, googles) when giving chemo. She said it's because some chemo are very toxic and may burn the skin if touched with bare skin. That is also why when infusing chemo, they must make sure they check blood backflow to make sure the needle is in the vein, cos if the needle went out of place and into the flash, the chemo drug will burn the skin, causing infection
This kinda shocked me cos.... such a toxic drug and we are pumping packets of it into our veins. It's really gross and freaky when I think of it...
Not trying to discourage chemo here, just feel that if you ever have relatives that has terminal cancer and don't have much years to live, if the doctor give a go ahead for no chemo, do not encourage them for chemo. Such a powerful toxin going into your already weak body may not help in killing the cells, but might further deteriorate the body...
Just a thought.
Last Round
It is round 6. I am pretty much back to normal life and sometimes forgetting I even have CLL.
Good and bad I guess. Live life to the fullest and hope for the best in life. Last round already. One more round of flesh poking, drug dripping, medicine popping days and it will all come to a halt.
I am looking forward to that. :)
